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MISS K
KAIDENCE'S FAMILY
"THE BERLIN HEART"
AFTER 1ST HEART TRANSPLANT
KAIDENCE'S JOURNEY
I spent 127 Days at Primary Childrens Hospital in the PICU. I was born healthy but became ill after catching a virus that caused my Cardiomyopathy (an enlarged heart). My heart was not pumping and I was dying. We were granted special government permission upon emergency use to implant the "Berlin Heart" an LVAD (Left Ventricular Assist Device) for babies. This would give me more time to wait for a heart. I was the first patient in the state of Utah to receive this device. I received the experimental device in November 2007. It saved my life and I received a heart transplant December 2007, two days before Christmas. My new heart has given me a new chance at life and I am forever grateful to the family that gave me my "Angel Heart". On Monday September 26th 2011 I went into my yearly heart cath and biopsy. The results came back showing that I now have something called Coronary Artery Disease in my perfect little heart. My family was devastated with this news. The docters explained that due to the disease in my arteries I could at any moment have a fatal heart attack. The only option we had left was to list me for a second heart transplant. So here we are waiting, hoping and praying for another miracle!
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